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Little Star Center for Autism
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About Autism

 


What is Autism

Autism is a developmental disability that affects, often severely, a person's ability to communicate and socially interact with others. It is four times more prevalent in males than females.

Currently, autism is believed to affect 1 in every 166 people. The rate of people being diagnosed with autism has increased substantially over the past two decades. Although this may be in part due to improved diagnostic techniques and to changes in the criteria for autism spectrum disorders (see below), the majority of experts agree these changes are not enough to explain the epidemic rates at which autism is being diagnosed.

Autism Spectrum Disorders is an umbrella term that includes classic autism (also known as Kanner's autism or Kanner's syndrome), Asperger's syndrome, and pervasive developmental disorder (PDD). Autism is considered a spectrum disorder because the number and intensity of the symptoms people with autism display may vary widely. However, all people with autism demonstrate impairments in the following three areas: communication, social relationships and restricted patterns of behavior.

The spectrum ranges from those who are severely affected, less able, and dependent on others to those who are of above-average intelligence and independent, yet lacking in social skills.

Diagnosing Autism

Currently, there is no single medical test that will definitively diagnose autism. Instead, the diagnosis is made on the basis of observable characteristics of the individual.

Because most children start showing symptoms of autism at about 18-24 months, British researchers have developed a screening tool called the Checklist for Autism in Toddlers (CHAT) CHAT - please click here for more information). The CHAT (which takes five minutes to administer) has been shown to be highly effective in predicting which children will develop autism, PDD, Asperger's or other developmental syndromes.

Before embarking on any sort of diagnosis, however, it is important to rule out possible physical causes for an individual's behavior. Please consult your physician or pediatrician if you have concerns about a family member or friend.

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Treating Autism

There is no single "cure" for autism, and no one treatment that works for every child. Some treatments and therapies used to help individuals with autism have research proving their efficacy, others do not. Some treatments are specific to individuals exhibiting very specific characteristics. What works for one child may not work for another.

It is therefore important that parents and professionals investigate the claims of the various treatments they see offered, and that they evaluate the potential risk or value to the person who has autism.

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Living with Autism

Living with a child who has autism often means readjusting our expectations of our family, both in terms of the normal, day-to-day and of special events and occasions.

Sometimes, families with a child with an ASD find themselves isolated from others, either because the parents are overwhelmed and too tired to do anything, or because they are worried or embarrassed by what their child may potentially do (or not do) in a social situation. Parents or other caregivers may find themselves becoming depressed, or withdrawing from civic, religious or recreational activities they once enjoyed.

Teaching your child basic social and communication skills and finding support to get challenging behaviors under control will make life easier for everyone in your family. If you child is non-verbal, teach him or her a visual communications system such as PECS. Your child will be less frustrated and gain confidence, knowing their needs are being understood. Visual schedules are helpful for letting a child know what will happen next. You may also want to consider getting your child to participate in family life by giving them simple chores (sorting silverware often appeals to children with autism). With a few alterations and solid supports in place, you can begin to build a new kind of family life.

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Related Links

Chicago, Dr. chez
http://autismcoach.com/Carn-Aware.htm

The ME-List
The ME-list is an internet forum for exchanging information relating to Applied Behavior Analysis (ABA) and autism. http://people.sca.uqam.ca/~sqa/MeList/MelistInstruct.pdf

Folks: Landau Kleffner Syndrome
http://www.bobjanet.demon.co.uk/lks/fws.htm

ABA Resources
This website has lots of free downloads available.
www.abaresources.com

Ability OnLine
Ability OnLine is a family friendly, bully-free safe Internet community where children/youth with disabilities/illness and their parents can meet others like themselves, make friends from all over the world, share their hopes and fears, find role-models and mentors and feel like they belong.
www.ablelink.org

Autism Awareness Centre
Autism Awareness Centre Inc's vision is to provide Canadian families and professionals with information and education which will affect positive change in the lives of those diagnosed with Autism Spectrum Disorders. www.autismawarenesscentre.com Autism Connect Autismconnect is a new, FREE, non-commercial web site, providing news, events, world maps, and rapid access to other web sites with information on autism.
www.autismconnect.org

Autism Research Institute
The site is primarily devoted to conducting & disseminating research results related to Autism Spectrum Disorders.
www.autism.com/ari

AutismToday
Is a leading online magazine and information center where people can find the latest news and connect with professionals and resources.
www.autismtoday.com

BBB Autism
BBB Autism offers an online support network,many printable articles, as well as almost 2,000 links pertaining to autism. There is a section of Ontario based information affiliated with Autism Society Ontario - York Region Chapter.
www.bbbautism.com

CONNECTS
Mental Health Foundation for People with Learning Disabilities 'Connects' is a world-wide, interactive, personalized forum for the sharing of information by people whose lives are touched by mental health problems and/or learning disabilities. The site contains information about organizations, websites, events, and new concerned with mental health or learning disabilities.
www.connects.org.uk

The Groden Center
This site offers information about the various services offered by the Groden Center in Rhode Island. It also features information regarding the impact of anxiety on individuals with ASD and strategies that help such as progressive muscle relaxation and picture rehearsal techniques. www.grodencenter.org The Gray Center for Social Learning & Understanding An informative non-profit site including Carol Gray's Social Stories, and much other informative information and ideas.
www.thegraycenter.org

Indiana Resource Center for Autism (IRCA)
This site has many well written practical articles, a newsletter, and excellent links.
www.iidc.indiana.edu/~irca/welcome2.html

International Rett Syndrome Association
This site has over 500 pages of information about Rett Syndrome Disorder. www.rettsyndrome.org

National Alliance for Autism Research (NAAR)
NAAR is "dedicated to finding the causes, prevention, effective treatment and ultimately cure for Autism."
www.naar.org

National Autistic Society
This site includes information on ASD and what is available in the UK for people affected by ASD.
http://www.nas.org.uk

Oops... Wrong Planet Syndrome
A site packed with information on ASD, and a very extensive series of links
www.isn.net/~jypsy/autlink.htm

ParentBooks
Parentbooks offers a comprehensive selection of resources on Autism Spectrum Disorder - both in their Toronto store and through online purchases. Geneva Centre has had a long relationship with the knowledgeable staff at ParentBooks.
www.parentbooks.com

PECS.com
This is the site for information on upcoming PECS training, purchasing materials, etc. It is run by Pyramid Educational Consultants.
www.pecs.com

Sensory Resources
This site specializes in sensory integration and sensory processing.
www.sensoryresources.com

Talk Autism
This site provides a forum for the autism community to share knowledge, information and assistance.
www.talkautism.com

Tony Attwood
Informative website focussed on Aspergers Syndrome. Extensive links to sites of interest.
www.tonyattwood.com.au

The Doug Flutie Jr. Foundation for Autism
Professional football player Doug Flutie has established a foundation aimed at funding research into autism, and offering financial support to disadvantaged families coping with the high costs of caring for children affected by autism.
www.dougflutiejrfoundation.org

Tourette Syndrome Foundation of Canada
This is a national voluntary organization dedicated to helping individuals with Tourette Syndrome and their families. www.tourette.ca Verbal Behavior Network Site focussed on ABA principles that emphasize the teaching of verbal behavior.
www.verbalbehaviornetwork.com

Yale Child Study Center
The Yale Developmental Disorders Clinic (part of the Yale Child Study Center) is headed by Fred Volkmar, M.D. and Ami Klin, Ph.D. two of the most respected experts in the field of ASD. This site provides information on their research and publications.
www.autism.fm

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